By Tim Spears for WISH-TV.
Broadcast version by Joe Ulery for Indiana News Service reporting for the WISH-TV-Free Press Indiana-Public News Service Collaboration

In the face of Medicaid cuts, autism advocates in Indiana are focusing on protecting coverage of a popular therapy.

As News 8 reported, the Indiana Family and Social Services Administration will reduce Medicaid coverage of applied behavior analysis, or ABA therapy. Individuals will be limited to between 30-38 hours of ABA per week, depending on their diagnosis, and will only be covered for a total of 36 months. 

That three-year coverage cap was initially planned to be retroactive, but the FSSA changed course this past Friday following widespread pushback. The changes go into effect April 1. 

Parents like Jana Tiede believe ABA coverage should be based on existing need, not how long a person has needed it.

“With the help of ABA she’s really starting to put together those social connections,” Tiede said. “Just to say that an arbitrary three-year mark for someone like Ryah, that doesn’t seem appropriate to me.”

ABA therapy is behavior based, helping individuals with autism improve communication, socialization, and development. 

When the FSSA first proposed cuts to ABA coverage, Tiede said she reached out to her local lawmakers, State Rep. Hunter Smith (R-Zionsville) and State Sen. James Buck (R-Tipton Co.). 

She said she felt ignored when neither responded. 

“I was really hoping that a dialogue could be created and it was pretty disappointing,” Tiede said. 

The Autism Society of Indiana (ASI) is planning an advocacy day at the statehouse, Monday, so people can directly share their stories with lawmakers face to face. 

“We feel a lot of lawmakers don’t even know what autism is,” ASI Dir. of Training & Legislation Rachel Deaton said. “If a lawmaker understands what a parent is going through, from the time they wake up to the time they go to bed and how much ABA is helping them, they might be willing to advocate for it.”

Indiana is trying to get ABA spending under control after an audit found the state made at least $56.5 million in improper Medicaid payments for ABA services over the course of a year. 

The ABA cuts also come as the Braun Administration initiates a larger Medicaid crackdown by increasing eligibility checks, supporting legislation to add work requirements and enrollment caps, and ordering providers to stop advertising Medicaid programs. 

John Lotz, whose son Drake went through ABA, believes these changes are focused on regulating the parents rather than providers. 

“Our children are discriminated against every day,” Lotz, an advocacy leader with Indiana Profound Autism Alliance, said. 

He wants the FSSA to avoid implementing the three-year cap, and instead base coverage on need. He also doesn’t think it will do much to curb improper billing. 

“You’re really not going to hurt the [ABA] centers because they’re just going to re-adjust their business model to bring in more kids for fewer hours,” Lotz said. “The ones that are going to be pushed out are the ones with the greatest needs.” 

ASI will be at the statehouse from 9 a.m. to 2 p.m. Monday. Deaton emphasizes there are no plans for a protest, but the organization will inform people how to advocate for policies to protect people with autism.


Tim Spears wrote this article for WISH-TV.


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Nevadans with disabilities are concerned with proposed federal cuts to Medicaid, despite claims from GOP lawmakers that the cuts target only waste, fraud and abuse.

The U.S. Senate is currently considering a federal budget reconciliation package containing cuts to Medicaid and other social safety nets. The bill narrowly passed the House last month, with the latest version proposing cuts to Medicaid worth more than $700 million.

Ace Patrick, a Nevadan living with a disability, said other proposed changes in the bill, such as implementing work requirements to qualify for Medicaid, would be particularly challenging for those with disabilities.

"Those of us that could work, are working," Patrick said. "Those of us that cannot work, and there are many people on disabilities who are unable to work, who are in their homes, in apartments, in group homes, in nursing care facilities - what are they supposed to do without care? It will be devastating and many of us will die."

Republican lawmakers have said work requirements may help boost employment. The majority of Medicaid recipients already work, even if it's for informal jobs that don't produce pay stubs. Health-care advocates argue low-income Americans are already struggling to put food on the table and cover their housing costs, and clearing a work requirement would be yet another hoop to jump through.

About 740,000 Nevadans are enrolled in Nevada Medicaid, according to KFF, a nonprofit specialized in health policy research. The state program covers about 35% of working-age adults living with a disability in the Silver State.

Patrick said politicians in the nation's capital aren't thinking about the consequences of the cuts.

"I don't know what they think we're all going to do," Patrick said. "It's going to overload the ER, if they're even able to manage without getting that kind of income."

Advocates have warned that significant cuts to Medicaid could increase the number of unprofitable hospitals, especially in rural parts of the state, which can then put them at greater risk of financial distress or even closing their doors.

Indiana University now trains police academy recruits in Deaf culture awareness and basic American Sign Language.

The program aims to improve communication between future officers and the Deaf community across campuses statewide.

Brennan Cox, a law student and part-time officer for the Indiana University Police Department, helped launch the course after noticing a gap in police training on interacting with Deaf individuals.

"This training is beneficial for the Deaf community because it creates safer interactions with officers and members of the Deaf community, creates more engagement with the Deaf community," Cox explained. "Really, we just want the Deaf community to know that we want to learn and that officers have a desire to learn about the Deaf community."

The nearly three-hour course features Deaf faculty who teach recruits key signs like "police," "help," and "stop," while emphasizing patience and alternative communication methods.

Cox noted the training also benefits officers themselves.

"What made me want to bring this training to IU Police Academy is I took ASL when I was in my undergraduate at IU for two years," Cox recounted. "It made me really just become passionate about how law enforcement interacts with members of the Deaf community and how we can better serve them."

The program now includes recruits from Indiana University campuses in Bloomington, Indianapolis, and South Bend and plans to expand to other agencies.


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Rural Nevada is facing a housing and transportation crisis. Advocates for those with disabilities say things are getting out of hand.

Dee Dee Foremaster, director of the Rural Center for Independent Living, said there is not enough available low-income housing, and added the units that are available to folks on the Housing Choice Voucher program, formerly called Section Eight, is "substandard."

She added the average Nevadan on Social Security receives almost $1,000 a month. But the average Nevadan can expect to pay around $1,400 a month in rent.

"People are having to double up to be able to make their rent. And it makes it difficult because a lot of times some people with disabilities really would prefer to live by themselves," she said.

Foremaster added she is among those who feel like the calls they are making for housing reform are falling on deaf ears. And while local leaders are eyeing federal lands as part of the solution to address the housing shortage, Foremaster said she has solutions that are more immediate, including creating a program for landlords to receive tax incentives for allocating units to low-income Nevadans.

She stressed that even in rural Nevada, the housing supply isn't able to keep up with demand, and said easing restrictions on accessory dwelling units would help everyone.

"So that people have an array of plans to be able to draw from that are approved, so that they don't have to go through the building commission and hoops that we all have to jump through every time we want to build something on a property," she explained.

Margaret Marcucci, with the Elko support staff of the Rural Center for Independent Living, said a lack of transportation is another issue impacting people's daily lives.

"I won't tell you how many times I get calls from friends, going 'I'm stuck, can you come get me?' or 'Can you take me to an appointment?' said Marcucci. "A lot of our seniors and a lot of disabled do not go to the doctor because they can't get there."

Last year, a free ride-share program launched in rural Nevada to help remove barriers to access medical care. But Marcucci is calling for a more diversified and flexible fleet of services that can get folks to where they need to go.


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