Dementia, a disease with profound effects on families, loved ones and caregivers, affects more than 55 million people globally, including 6 million in the U.S.
New research shows people can reduce their risks by making even small changes in their daily routines, for example, through exercise and eating more vegetables.
Sarah Lock, senior vice president for policy at AARP, said there are also important steps policymakers can take to make it easier for people to maintain healthy behaviors.
"When we do that, we can disrupt dementia," Lock asserted. "That's a really exciting possibility, given that so many of us -- as our nation is aging -- are facing that risk."
Dementia is the third-largest cause of death in the nation for people age 70 and older, and two-thirds of Americans have at least one major potential risk factor. People who smoke five cigarettes per day have a 16% higher dementia risk than nonsmokers. People with prediabetes face a 25% increased risk, which rises to 50% with full-blown diabetes. Prolonged exposure to air pollution is also a major dementia risk factor.
Other risk factors include alcohol use, depression, high body mass index, hearing loss, hypertension, low education, physical inactivity, social isolation and traumatic brain injury. Lock pointed out policies to reduce these risks can vary by state. For example, in Colorado, physical inactivity may not be as big of a
problem as in other states, but hearing loss is relatively high.
"We can suggest to policymakers that they focus on ways to help people screen and correct for hearing loss," Lock noted. "In Colorado, that might be a wiser use of public dollars, to go after the problem that seems to be biggest in your state."
Lock added the goal of the research is to offer people pathways to better brain health and to give older Americans more quality time with their loved ones. The findings were released by the new Dementia Risk Reduction Project, a collaboration between AARP, the Alzheimer's Disease Data Initiative and the University of Washington.
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Families of rural Iowans with Alzheimer's disease and other forms of dementia face a crucial lack of mental health services and advocates are meeting with some rural residents today to assess their most important needs.
Iowa has only 26 geriatricians practicing in the state. The Alzheimer's Association said the state needs at least four times as many to meet the growing demand by 2050, and 32% more direct care workers for dementia patients by 2030.
Lauren Livingston, communications director for the Iowa chapter of the Alzheimer's Association, said the current provider shortage falls most heavily on rural Iowa, which has been declared a dementia care "desert."
"Most rural communities are unfortunately not lucky enough to have even a neurologist that is specialized in Alzheimer's disease and can help diagnose," Livingston pointed out. "Even with that first step of diagnosis, there isn't anywhere to even get a referral to a doctor who would know how to diagnose it or what the next steps were."
The Alzheimer's Association said 11% of Iowans age 65 and older are living with the disease. Today's online forum is designed to hear from affected rural residents about their most pressing concerns.
Livingston noted they hope to get good information from rural health care providers, families and caregivers about the types of support services missing in their communities.
"Then from there, we want to be able to put together more of a plan of how we can help in these rural communities and close that gap," Livingston emphasized.
Roughly 62,000 Iowans live with Alzheimer's disease, and another 100,000 are unpaid family caregivers. AARP Iowa is pushing for a measure in the state legislature to offer them a tax credit to help offset their out-of-pocket care expenses.
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What is the quality of Virginia's nursing homes? If you ask one advocate, he says "bad."
Jared Calfee, state advocacy director for AARP Virginia, said nursing home inspectors are "woefully" behind.
A possible legislative fix is a bill that would update what Calfee called the outdated fee structure for medical facilities.
The Virginia Department of Health would use those extra funds to increase recruitment and retention of inspectors. Calfee added understaffing can lead to worsening health for nursing home residents.
"What we know is that understaffing leads to negative outcomes, like pressure sores, falls, and ultimately sickness, and even death in a lot of cases," said Calfee. "And so the best thing that we can do for nursing home residents is ensure that there is adequate staff to provide quality care in our facilities."
The Virginia Joint Legislative Audit and Review Commission finds that nearly 40% of nursing homes are in need of their biennial state licensing inspection.
And the Commonwealth has the sixth highest proportion of nursing homes that have not been inspected within two years.
Another budget proposal would include $3.5 million to train Virginians as certified nurse aides, or CNAs.
CNAs provide the bulk of assistance within nursing facilities. Calfee said this small budget ask could have big impacts for nursing home staff.
"This is a high-demand area where we badly need staff," said Calfee, "so a program like this could take a relatively small amount of money, and hopefully infuse the workforce with badly needed staff - to make sure that our nursing homes can staff adequately."
A Virginia Health Care Association survey in 2022 found that 93% of facilities in the Commonwealth have openings for CNAs.
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A number of bills in the Maryland legislature are looking to increase the quality and accountability of the state's nursing homes and assisted living facilities.
Advocates for seniors are supporting a bill that would require facilities to install video surveillance systems in common areas.
That way, there would be video evidence to monitor any neglect, abuse or exploitation of residents.
Another bill would increase the number of inspections of assisted living facilities.
Tammy Bresnahan the senior director of advocacy for AARP Maryland.
She said a lot of her focus this legislative session is on assisted living facilities, because of how many high-care individuals they take in.
"We've been looking at assisted living, because they're systematically taking more chronically health-needed individuals," said Bresnahan. "So they look a lot like what's in a nursing home, but people are privately paid for that."
Bresnahan explained that nursing homes have many layers of accountability, given the state and federal medicare dollars flowing into the facilities.
Assisted living centers, on the other hand, usually only receive funds from private customers - with little oversight.
Data from the Center for Medicare and Medicaid Services found Maryland has some of the longest wait times for nursing home inspections, at nearly three years.
Bresnahan added that it's important to have more inspections for assisted living facilities.
"The regulations really only require initially for the licensure to have the inspection - and if there's a problem, they have to go out," said Bresnahan. "So, they really want their assisted living to be inspected more often. "
Bresnahan said any Maryland senior considering a nursing home or assisted living facility should call the Maryland Office of Healthcare Quality.
That office can let seniors know if a facility has a history of issues.
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